Dominic Replace 5.0 – Brown Eyed Baker3 min read
Comfortable October, pals!
I hope you will have all had an exquisite begin to fall and are having fun with the cooler temperatures and delightful fall days.
I’m popping in at this time with a brand new Dominic replace. Thanks all a lot in your emails, the playing cards and presents that you simply’ve despatched, and the entire prayers you’ve supplied up; our household appreciates all of it so very a lot ❤️
The Newest Remedies and Scans
After Labor Day, Dominic had his second spherical of immunotherapy remedy, adopted up by a brand new set of scans and a bone marrow biopsy in mid-September.
We acquired very encouraging information… the scan confirmed that fifty% of the most cancers has cleared, which is the largest transfer of the needle that we’ve seen to date.
The total-body radioactive scan completed for neuroblastoma known as an MIBG scan and it’s given a “Curie rating” – 10 segments of the physique are scored 0 to three, primarily based on how a lot most cancers is current, which implies the very best rating it will possibly present is 30. In Could, Dominic’s rating was 27; after surgical procedure and previous to starting immunotherapy, his rating was 26. After the second spherical of immunotherapy, this most up-to-date scan confirmed a rating of 13.
His bone marrow biopsy confirmed what the physician referred to as “only a hint” of neuroblastoma cells, a discount from the earlier 5 to 10%.
We pray that the immunotherapy remedies proceed to be this efficient and that he’ll quickly be utterly cleared of the most cancers that is still.
Dominic can have his third spherical of immunotherapy the week after subsequent, after which the fourth spherical a couple of month after that, adopted by one other set of scans.
Immunotherapy, in contrast to chemotherapy, doesn’t trigger white counts, platelets, or hemoglobin to drop, so we don’t have to fret about twice-weekly lab work or transfusions. We simply want to enter clinic as soon as per week to have his central line dressing modified.
Within the Meantime…
Dominic began kindergarten final week! It has made my coronary heart so joyful to see him having fun with regular 5-year-old life, displaying us the papers he’s labored on, and speaking in regards to the little issues which have occurred in the course of the day.
After spending the final six months going forwards and backwards from hospitals, inpatient stays for chemotherapy, surgical procedure, countless clinic visits, transfusions, radiation, and every little thing in between, having some normalcy in on a regular basis life has been such a blessing for him.
AND he turns 6 this week! 🎉
You’ll have seen a few new emails from me this final week! Thanks a lot for the superior suggestions!
I’m slowly beginning to get again into the swing of issues and with a barely extra predictable schedule at dwelling, I’m hoping to convey again Friday Issues and ship you scrumptious recipes on a semi-regular foundation once more. Keep tuned 😋